Adoniya’s Story

Adoniya’s first few hours of life were unexpectedly challenging. Shortly after birth, her family found out that she was born with a severe defect that occurs during fetal development in a female’s lower abdominal structures. Adoniya was also born with bone, heart and kidney defects.

After years of several surgeries and not being able to find the help they needed, Adoniya’s parents attended a conference to connect with specialists about their daughter’s challenges. Without any providers specializing in Adoniya’s condition in her home state of Arizona, it was suggested to bring her to Nationwide Children’s Hospital.

Adoniya and her family traveled to Nationwide Children’s Center for Colorectal and Pelvic Reconstruction for a two-week series of tests and programs that taught her parents how to help her and returned months later to undergo a procedure to repair the reconstructive surgery she’d had as an infant. At only six years old, this was Adoniya’s ninth surgery. When she was seven and a half, Adoniya returned with her family to Nationwide Children’s for another surgery, this time to remove a distended colon.

“It is very encouraging to be able to be at a place that our daughter is treated not as a number, but as a person. It’s unheard of for a busy surgeon to actually respond almost instantly to a worried parent’s email – but Dr. Marc Levitt did. Although Phoenix is a long commute to Columbus, Ohio, it is well worth it just knowing that there is a team there for our daughter,” says Adoniya’s mother, Ayodele.

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Adoniya’s first few hours of life were unexpectedly challenging. Shortly after birth, her family found out that she was born with a severe defect that occurs during fetal development in a female’s lower abdominal structures. Adoniya was also born with bone, heart and kidney defects.

After years of several surgeries and not being able to find the help they needed, Adoniya’s parents attended a conference to connect with specialists about their daughter’s challenges. Without any providers specializing in Adoniya’s condition in her home state of Arizona, it was suggested to bring her to Nationwide Children’s Hospital.

Adoniya and her family traveled to Nationwide Children’s Center for Colorectal and Pelvic Reconstruction for a two-week series of tests and programs that taught her parents how to help her and returned months later to undergo a procedure to repair the reconstructive surgery she’d had as an infant. At only six years old, this was Adoniya’s ninth surgery. When she was seven and a half, Adoniya returned with her family to Nationwide Children’s for another surgery, this time to remove a distended colon.

“It is very encouraging to be able to be at a place that our daughter is treated not as a number, but as a person. It’s unheard of for a busy surgeon to actually respond almost instantly to a worried parent’s email – but Dr. Marc Levitt did. Although Phoenix is a long commute to Columbus, Ohio, it is well worth it just knowing that there is a team there for our daughter,” says Adoniya’s mother, Ayodele.

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