Adyn’s Story

When Adyn was one and a half, she was diagnosed with Spinal Muscular Atrophy (SMA) at Nationwide Children’s Hospital. She was initially given just six months to live. Now 14 years old, Adyn has been beating the odds ever since.

“We absolutely love Nationwide Children’s. Knowing that the best children’s hospital for our daughter is less than an hour and a half away brings a significant confidence and security that’s hard to describe,” says Adyn’s dad, Brian.

Adyn started public school when she was three and was a trailblazer by not only excelling academically, but also working with the school to get the necessary equipment she needed as she grew.

She’s attended music festivals since she was five months old, and it’s still one of her very favorite activities and now a special way she likes to connect with other kids like her.

In March 2018, Adyn had a very significant spinal fusion surgery. Leading up to it, Adyn and her family experienced varying degrees of anxiety, knowing how important the procedure was. The surgery went wonderfully, and once again, Adyn demonstrated her resiliency and fighting spirit. She was able to go home after nine days in the hospital.

“What we experienced was nothing less than incredible. From the surgeons who performed a nearly 10-hour surgery, to teams of physicians, to the entire nursing staff, to the physical therapists and occupational therapists – to everyone else we came in contact with during our stay. Our family left Nationwide Children’s that day actually feeling sad that we would not see some of these great people on a daily basis, but incredibly thankful for their time and care,” says Brian.

The Spinal Muscular Atrophy Clinic at Nationwide Children’s Hospital is the only center in the world that has carried out clinical trials in all three major forms of the disease. Several trials are ongoing and additional trials are in the planning stages.

“Nationwide Children’s means a lot to me. It’s important because they helped me get through my surgery and made me feel very safe during the entire stay at the hospital,” says Adyn.

Adyn is a loving, talented teenager whose current passions include being a three-year member of her school’s band, Broadway musicals (especially Hamilton) and creating art.

https://flutter.nationwidechildrens.org/wp-content/uploads/2018/11/Adyn-Horizontal-edit.jpg

When Adyn was one and a half, she was diagnosed with Spinal Muscular Atrophy (SMA) at Nationwide Children’s Hospital. She was initially given just six months to live. Now 14 years old, Adyn has been beating the odds ever since.

“We absolutely love Nationwide Children’s. Knowing that the best children’s hospital for our daughter is less than an hour and a half away brings a significant confidence and security that’s hard to describe,” says Adyn’s dad, Brian.

Adyn started public school when she was three and was a trailblazer by not only excelling academically, but also working with the school to get the necessary equipment she needed as she grew.

She’s attended music festivals since she was five months old, and it’s still one of her very favorite activities and now a special way she likes to connect with other kids like her.

In March 2018, Adyn had a very significant spinal fusion surgery. Leading up to it, Adyn and her family experienced varying degrees of anxiety, knowing how important the procedure was. The surgery went wonderfully, and once again, Adyn demonstrated her resiliency and fighting spirit. She was able to go home after nine days in the hospital.

“What we experienced was nothing less than incredible. From the surgeons who performed a nearly 10-hour surgery, to teams of physicians, to the entire nursing staff, to the physical therapists and occupational therapists – to everyone else we came in contact with during our stay. Our family left Nationwide Children’s that day actually feeling sad that we would not see some of these great people on a daily basis, but incredibly thankful for their time and care,” says Brian.

The Spinal Muscular Atrophy Clinic at Nationwide Children’s Hospital is the only center in the world that has carried out clinical trials in all three major forms of the disease. Several trials are ongoing and additional trials are in the planning stages.

“Nationwide Children’s means a lot to me. It’s important because they helped me get through my surgery and made me feel very safe during the entire stay at the hospital,” says Adyn.

Adyn is a loving, talented teenager whose current passions include being a three-year member of her school’s band, Broadway musicals (especially Hamilton) and creating art.

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