Ashley’s Story

When Ashley was only two years old, she was diagnosed with Caudal Regression Syndrome – a rare complex disorder characterized by abnormal development of the lower (caudal) end of the spine. Her family was immediately faced with the understanding of how rare her condition was when doctors in their local area confirmed they had never treated it.  Ashley’s biggest problems were her neurogenic bladder and bowel. After doing some research, Ashley’s mom, Lori, found the Center for Colorectal and Pelvic Reconstruction Team at Nationwide Children’s Hospital in Columbus, Ohio. Ashley was seen at Nationwide Children’s and started undergoing a management program for her condition. At the same time this was exciting and hopeful for her family, they also realized this would be something Ashley would have to do the rest of her life.  But several years into their journey, a new treatment was suggested for Ashley – the Sacral Nerve Stimulator.  The only problem was Ashley didn’t have a sacral nerve to attach the device to.  Working with Dr. Seth Alpert, the decision was made to do a new and innovative procedure – attaching the stimulator to Ashley’s pudendal nerve.

Today,  Ashley loves to play sports, especially basketball.  Activity was always a struggle before, but thanks to the Sacral Nerve Stimulator, Ashley is now better able to enjoy the sport she loves.

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When Ashley was only two years old, she was diagnosed with Caudal Regression Syndrome – a rare complex disorder characterized by abnormal development of the lower (caudal) end of the spine. Her family was immediately faced with the understanding of how rare her condition was when doctors in their local area confirmed they had never treated it.  Ashley’s biggest problems were her neurogenic bladder and bowel. After doing some research, Ashley’s mom, Lori, found the Center for Colorectal and Pelvic Reconstruction Team at Nationwide Children’s Hospital in Columbus, Ohio. Ashley was seen at Nationwide Children’s and started undergoing a management program for her condition. At the same time this was exciting and hopeful for her family, they also realized this would be something Ashley would have to do the rest of her life.  But several years into their journey, a new treatment was suggested for Ashley – the Sacral Nerve Stimulator.  The only problem was Ashley didn’t have a sacral nerve to attach the device to.  Working with Dr. Seth Alpert, the decision was made to do a new and innovative procedure – attaching the stimulator to Ashley’s pudendal nerve.

Today,  Ashley loves to play sports, especially basketball.  Activity was always a struggle before, but thanks to the Sacral Nerve Stimulator, Ashley is now better able to enjoy the sport she loves.

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