Brave

Nadia was diagnosed with Crohn’s disease at the age of six. Since then she has undergone numerous tests, scopes and colonoscopies, along with inpatient stays. She and her family’s first 18 months after her diagnosis included a roller coaster of emotions, tests, blood work, more tests and lots of learning.

Many people who meet Nadia look at her and assume she is fine and healthy, without knowing the battles she faces daily.  In her mother Holly’s words; “that is both the blessing and the curse of an invisible disease.”

At the Division of Gastroenterology, Hepatology and Nutrition, our diagnostic and therapeutic capabilities are some of the most advanced in the world. From the child with rumination syndrome or gastroparesis to those with food allergies or constipation, we are blazing the trail to best possible outcomes for our patients.

“The disease is not easy, nor are the medications to help treat it, but with the help of our Nationwide Children’s Hospital team we are doing the very best we can. No one expects when they decide to become a parent that there will be a non-curable disease that ‘pops up.’ Nationwide Children’s is a partner in this lifelong journey with our daughter,” says Holly.

Nadia receives monthly infusions to help control the disease. She is very brave and is the happiest, most joy-filled little girl. Nadia’s says that if she could have any wish, it would be that “no kid has to be sick or in the hospital.” She enjoys life like other 8-year-olds and enjoys school, swimming, tennis, Shopkins and her American Girl dolls. Nadia says, “I just know one day there will be a cure,” and plans on working on one while attending Northwestern when she’s older.

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  • Name: Nadia T.Nadia Tong
  • Condition(s): Crohn’s Disease
  • Age at Treatment: 6
  • Age Today: 01/20/201011 Years

Nadia was diagnosed with Crohn’s disease at the age of six. Since then she has undergone numerous tests, scopes and colonoscopies, along with inpatient stays. She and her family’s first 18 months after her diagnosis included a roller coaster of emotions, tests, blood work, more tests and lots of learning.

Many people who meet Nadia look at her and assume she is fine and healthy, without knowing the battles she faces daily.  In her mother Holly’s words; “that is both the blessing and the curse of an invisible disease.”

At the Division of Gastroenterology, Hepatology and Nutrition, our diagnostic and therapeutic capabilities are some of the most advanced in the world. From the child with rumination syndrome or gastroparesis to those with food allergies or constipation, we are blazing the trail to best possible outcomes for our patients.

“The disease is not easy, nor are the medications to help treat it, but with the help of our Nationwide Children’s Hospital team we are doing the very best we can. No one expects when they decide to become a parent that there will be a non-curable disease that ‘pops up.’ Nationwide Children’s is a partner in this lifelong journey with our daughter,” says Holly.

Nadia receives monthly infusions to help control the disease. She is very brave and is the happiest, most joy-filled little girl. Nadia’s says that if she could have any wish, it would be that “no kid has to be sick or in the hospital.” She enjoys life like other 8-year-olds and enjoys school, swimming, tennis, Shopkins and her American Girl dolls. Nadia says, “I just know one day there will be a cure,” and plans on working on one while attending Northwestern when she’s older.

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