condition: 22q Deletion Syndrome

Grant’s Story

“We will never forget the phone call from our genetic counselor with Grant’s diagnosis. You could tell she didn’t want to make the call, but the kindness in her voice still resonates with us today,” says Grant’s mom, Alicia. It all began a few years ago on Christmas morning when Alicia was rushed to a […]

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Born with Little Squeak and Mighty Will!

Caden’s first visit to Nationwide Children’s Hospital was when I was 5 months pregnant. In utero, he was diagnosed with Deletion22q syndrome. This syndrome is known to cause a multitude of defects, facial deformities, immunity issues, learning deficiencies and more. At the time of his birth he had a serious heart defect called Tetralogy of […]

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Bella’s Story

When you meet Bella, you meet a girl with an infectious smile, and you can’t help but smile back. Bella was born on a very cold day in February. Her parents held her and marveled at her beauty. She was perfect. 6 hours later, she stopped breathing. She was transported in the middle of a […]

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Braydon’s Fight

Braydon was born at 28 weeks and 1 day at 690 grams (1 pound 7 oz) because of absent blood flow to his umbilical cord. Mom and dad were told that he may not make it throughout the night. To the doctors surprise he made it. Little did we know how sick Braydon was. Braydon […]

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