condition: Caudal Regression Syndrome

Michael’s Journey

Two hours after birth on December 8th, 1999 Michael was rushed to Nationwide Children’s Hospital where he spent his first seven weeks in the NICU. After many tests, evaluations, and discussions with multiple disciplines, he was diagnosed with Sacral Agenesis/Caudal Regression Syndrome, a condition that means the absence of a tailbone which results in paralysis […]

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Ashley’s Story

When Ashley was only two years old, she was diagnosed with Caudal Regression Syndrome – a rare complex disorder characterized by abnormal development of the lower (caudal) end of the spine. Her family was immediately faced with the understanding of how rare her condition was when doctors in their local area confirmed they had never […]

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