condition: Cerebral Palsy

Jack’s Story

We arrived at Nationwide after a horrendous 9 months fighting a MRSA infection from a baclofen pump revision in St. Louis. We came to Nationwide Children’s to be treated by Dr. Leonard, Chief of Neurosurgery, who was formerly Jack’s neurosurgeon prior to this last pump revision. Dr. Leonard saved Jack’s life, ultimately advising to remove […]

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Joel’s Story

Joel loves swimming, fishing, bowling, playing Buddy Ball baseball, getting A’s and B’s in school, and telling jokes. Unstoppable Joel does all of these things from his power chair and with his communication device. You see, Joel has cerebral palsy. Joel’s journey with Nationwide Children’s Hospital began the day he was born due to his […]

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Katie’s Wacky World

I sat down with the doctor as he began to tell me my 2 pound baby had Cerebral palsy and would probably never walk or talk and life alone would be very hard for her. She seemed so innocent and oblivious of what was being said as I held her hand through the glass door […]

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EmmeClaire’s Story

EmmeClaire was adopted from China in the summer of 2012 when she was 15 months old. Emme’s paperwork did not have any details on her diagnosis beyond “delayed.” When her family arrived in China and met her, they found out that Emme was unable to walk or crawl. Upon arriving home, Emme was seen at […]

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Hailey’s Story

Who rides on two wheels, defies all odds against her and can light up the room with her smile? Patient Champion Hailey! Hailey’s first few months of life certainly were not easy. She was born with Pulmonary Hypertension, a Grade 2 Intraventricular Hemorrhage, Patent Ductus Arteriosus (PDA), and an Atrial Septal Defect (ASD). Little Hailey’s […]

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D’Marion’s Story

D’Marion, also known as “Mari,” is a hero in every form of the word. To everyone he meets, he is an example of bravery and strength. An actual real-life hero to his family and friends – Mari fittingly loves superheroes, especially Batman and Superman. Mari’s courageous journey began when he was born full term, but […]

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Grayson and Scarlett’s Beginning

At 25 weeks and 5 days, Grayson and Scarlett decided they could no longer wait to come into our world. They cried on their own, little cries which suited their 1 pound, 15 ounces, and 2 pound bodies. They were wheeled from the OR to the NICU and into the plastic boxes that I later […]

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Quentin’s Story

Quentin was born 15 weeks early at Riverside Methodist Hospital in January 2013. A breathing tube was placed immediately and he was whisked away to the NICU. This was day one of our 316 day hospital stay. After 3 weeks at Riverside, Quentin was transported to the Main Campus of Nationwide Children’s Hospital because it […]

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Aaron’s Story

When you learn the long list of Aaron’s diagnoses, probably the last thing you would expect to hear are the words his mom, Jamie, uses to describe her son: “Aaron is a thriving 9-year-old boy.” But when you meet Aaron in person that is exactly who you will see. Aaron was born with Hypoplastic Left […]

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