condition: Cerebral Palsy

Skyler’s Journey

November 27th, 2006 was both the best and worst day of my life. After 9 months of preparing, my husband and I anxiously awaited the arrival of our first child, neither aware of the never-ending journey we were embarking on. That morning, I gave birth to a beautiful, healthy baby boy, who we named Skyler. […]

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Our Journey

We started our journey here at Nationwide Children’s Hospital a little over six years ago. We started seeing A’niya’s seizures when she was three months old. We brought her in and they began testing. At this time I was still only 17 years old. I was scared, confused and hurt. December 10th of 2010 is […]

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Jack’s Story

We arrived at Nationwide after a horrendous 9 months fighting a MRSA infection from a baclofen pump revision in St. Louis. We came to Nationwide Children’s to be treated by Dr. Leonard, Chief of Neurosurgery, who was formerly Jack’s neurosurgeon prior to this last pump revision. Dr. Leonard saved Jack’s life, ultimately advising to remove […]

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Quentin’s Story

Quentin was born 15 weeks early at Riverside Methodist Hospital in January 2013. A breathing tube was placed immediately and he was whisked away to the NICU. This was day one of our 316 day hospital stay. After 3 weeks at Riverside, Quentin was transported to the Main Campus of Nationwide Children’s Hospital because it […]

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Katie’s Wacky World

I sat down with the doctor as he began to tell me my 2 pound baby had Cerebral palsy and would probably never walk or talk and life alone would be very hard for her. She seemed so innocent and oblivious of what was being said as I held her hand through the glass door […]

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Grayson and Scarlett’s Beginning

At 25 weeks and 5 days, Grayson and Scarlett decided they could no longer wait to come into our world. They cried on their own, little cries which suited their 1 pound, 15 ounces, and 2 pound bodies. They were wheeled from the OR to the NICU and into the plastic boxes that I later […]

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Hailey’s Story

Who rides on two wheels, defies all odds against her and can light up the room with her smile? Patient Champion Hailey! Hailey’s first few months of life certainly were not easy. She was born with Pulmonary Hypertension, a Grade 2 Intraventricular Hemorrhage, Patent Ductus Arteriosus (PDA), and an Atrial Septal Defect (ASD). Little Hailey’s […]

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EmmeClaire’s Story

EmmeClaire was adopted from China in the summer of 2012 when she was 15 months old. Emme’s paperwork did not have any details on her diagnosis beyond “delayed.” When her family arrived in China and met her, they found out that Emme was unable to walk or crawl. Upon arriving home, Emme was seen at […]

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D’Marion’s Story

D’Marion, also known as “Mari,” is a hero in every form of the word. To everyone he meets, he is an example of bravery and strength. An actual real-life hero to his family and friends – Mari fittingly loves superheroes, especially Batman and Superman. Mari’s courageous journey began when he was born full term, but […]

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