condition: Cerebral Palsy

Skyler’s Journey

November 27th, 2006 was both the best and worst day of my life. After 9 months of preparing, my husband and I anxiously awaited the arrival of our first child, neither aware of the never-ending journey we were embarking on. That morning, I gave birth to a beautiful, healthy baby boy, who we named Skyler. […]

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Hailey’s Story

Who rides on two wheels, defies all odds against her and can light up the room with her smile? Patient Champion Hailey! Hailey’s first few months of life certainly were not easy. She was born with Pulmonary Hypertension, a Grade 2 Intraventricular Hemorrhage, Patent Ductus Arteriosus (PDA), and an Atrial Septal Defect (ASD). Little Hailey’s […]

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Jack’s Story

We arrived at Nationwide after a horrendous 9 months fighting a MRSA infection from a baclofen pump revision in St. Louis. We came to Nationwide Children’s to be treated by Dr. Leonard, Chief of Neurosurgery, who was formerly Jack’s neurosurgeon prior to this last pump revision. Dr. Leonard saved Jack’s life, ultimately advising to remove […]

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Aaron’s Story

When you learn the long list of Aaron’s diagnoses, probably the last thing you would expect to hear are the words his mom, Jamie, uses to describe her son: “Aaron is a thriving 9-year-old boy.” But when you meet Aaron in person that is exactly who you will see. Aaron was born with Hypoplastic Left […]

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Joel’s Story

Joel loves swimming, fishing, bowling, playing Buddy Ball baseball, getting A’s and B’s in school, and telling jokes. Unstoppable Joel does all of these things from his power chair and with his communication device. You see, Joel has cerebral palsy. Joel’s journey with Nationwide Children’s Hospital began the day he was born due to his […]

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Emma’s Story

Emma Dickman was born thirteen weeks early, weighing only 2 lbs 14 oz., and spent the first 72 days of her life in the NICU at Nationwide Children’s Hospital. One week before her first birthday, she was diagnosed with cerebral palsy. Cerebral Palsy, or CP, is a condition that causes movement difficulties. It results from […]

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Grayson and Scarlett’s Beginning

At 25 weeks and 5 days, Grayson and Scarlett decided they could no longer wait to come into our world. They cried on their own, little cries which suited their 1 pound, 15 ounces, and 2 pound bodies. They were wheeled from the OR to the NICU and into the plastic boxes that I later […]

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Our Journey

We started our journey here at Nationwide Children’s Hospital a little over six years ago. We started seeing A’niya’s seizures when she was three months old. We brought her in and they began testing. At this time I was still only 17 years old. I was scared, confused and hurt. December 10th of 2010 is […]

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Quentin’s Story

Quentin was born 15 weeks early at Riverside Methodist Hospital in January 2013. A breathing tube was placed immediately and he was whisked away to the NICU. This was day one of our 316 day hospital stay. After 3 weeks at Riverside, Quentin was transported to the Main Campus of Nationwide Children’s Hospital because it […]

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