condition: Cerebral Palsy

Aaron’s Story

When you learn the long list of Aaron’s diagnoses, probably the last thing you would expect to hear are the words his mom, Jamie, uses to describe her son: “Aaron is a thriving 9-year-old boy.” But when you meet Aaron in person that is exactly who you will see. Aaron was born with Hypoplastic Left […]

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Emma’s Story

Emma Dickman was born thirteen weeks early, weighing only 2 lbs 14 oz., and spent the first 72 days of her life in the NICU at Nationwide Children’s Hospital. One week before her first birthday, she was diagnosed with cerebral palsy. Cerebral Palsy, or CP, is a condition that causes movement difficulties. It results from […]

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Grayson and Scarlett’s Beginning

At 25 weeks and 5 days, Grayson and Scarlett decided they could no longer wait to come into our world. They cried on their own, little cries which suited their 1 pound, 15 ounces, and 2 pound bodies. They were wheeled from the OR to the NICU and into the plastic boxes that I later […]

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Jack’s Story

We arrived at Nationwide after a horrendous 9 months fighting a MRSA infection from a baclofen pump revision in St. Louis. We came to Nationwide Children’s to be treated by Dr. Leonard, Chief of Neurosurgery, who was formerly Jack’s neurosurgeon prior to this last pump revision. Dr. Leonard saved Jack’s life, ultimately advising to remove […]

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