condition: Chronic Lung Disease

The Miracle of Jayzon

Jayzon’s mom calls him “Champ” for good reason. Born weighing only thirteen ounces a little more than a year ago, this special preemie has gone through quite a fight in his short life. He has chronic lung disease, which led to his quickly getting a tracheostomy and G-tube. “The odds were totally against him,” says […]

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Hailey’s Story

Who rides on two wheels, defies all odds against her and can light up the room with her smile? Patient Champion Hailey! Hailey’s first few months of life certainly were not easy. She was born with Pulmonary Hypertension, a Grade 2 Intraventricular Hemorrhage, Patent Ductus Arteriosus (PDA), and an Atrial Septal Defect (ASD). Little Hailey’s […]

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Maggie “Monkey”

Maggie was my youngest of three kiddos. Her brother Dan (20) is the oldest, Mary Kate (18) is right in the middle and Mag just turned 16 in September. Being the baby, Maggie was often the center of attention. Maggie has Lennox Gastaut Syndrome, a severe form of epilepsy. She didn’t get that diagnosis until […]

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