condition: Congenital Heart Disease

Grant’s Story

When you look at Grant’s big grin, you would have no idea the challenges this young man has faced. When he was born at 40 weeks and 4 days gestation, he appeared to be a healthy baby boy weighing 9lbs. 6oz. It was a wonderful moment for the Geyer family. But it was just that […]

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Angela’s Story

Claudia Irizarry was just five months pregnant when a routine ultrasound revealed that her unborn daughter, Angela, had a life-threatening heart defect that left Angela’s heart with only one functioning chamber to pump blood. Babies born with this serious condition usually live just a short time unless their walnut-sized hearts undergo immediate reconstruction. At age […]

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My Journey with Congenital Heart Defects

I was born June 17, 1980. I wasn’t diagnosed with my heart defects until I was 3 days old. Dr. Josepha Craenen was my first cardiologist that started my treatment at Children’s. I had to wait until I was 8 years old to have my first Open Heart Surgery performed by Dr. James Kilman. I […]

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Strong Brave Girl

At 20 weeks pregnant Kiely’s mom had to go have a fetal echo done at Nationwide Children’s Hospital due to her older brother being born with multiple Congenital Heart Defects. It was discovered then that Kiely had an Aortic Coarctation. We were told that we would need to come back in 4 weeks to recheck […]

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Samantha’s Journey through CHD

Congenital heart disease is the most common birth defect and a lifelong condition with no cure. My name is Samantha I am from Huntington, WV and I was born with Congenital Heart Disease, I was diagnosed with Coarctation of the Aorta, Ventricular Septal Defect, Pulmonary Stenosis and Transposition of the Great Vessels. I have had […]

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Adam’s Story

Adam was brought to Nationwide Children’s with a rare congenital heart defect on the day he was born. Although we thought he would spend months in the NICU before having open heart surgery, we were fortunate to bring him home just three weeks later (surgery-free). The first 12 months of his life are a blur […]

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Our Ebstein’s Baby

This was my third pregnancy and I was going to the county hospital every week to get stress tests done. I thought everything was going good. I was induced into labor on Friday July 17, 2015. My baby girl was born at 4:45pm. The nurses were checking her out and getting her all cleaned up, […]

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Paxton’s Heart Journey

During my entire pregnancy, I believed I was carrying a perfectly healthy baby boy. On February 27th, I believed I was taking home a perfectly healthy baby boy. When Paxton was just a few weeks old he began throwing up frequently, and refusing to eat or sleep. After many doctors appointments and being told for […]

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