condition: Craniosynostosis

Liam’s Story

Liam was born with 16p11.2 deletion syndrome and lots of resulting complications. When his family brought him to Nationwide Children’s Hospital in Columbus from their home in West Portsmouth for a surgery, his mom, Edna, noticed that the shape of his head didn’t seem normal.  She asked Liam’s pediatrician about it at his next appointment […]

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Mighty Michael

Michael was a large baby, and when he was born the doctors had to use a vacuum extractor to assist in getting him out of the birth canal. That’s why, when his parents noticed that his head seemed misshapen, they assumed it was just a side effect of his birthday. Eventually they noticed that the […]

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