condition: Cystic Fibrosis

Emily’s Story

When you look at Emily, you see a beautiful young girl. You would not be surprised to learn that she loves sports, in particular soccer. But you would be surprised to learn that Emily is actually very sick. When Emily was born in 2004, she appeared to be a wonderfully healthy little girl. As she […]

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Emily’s Story

I was 11 years old when I was diagnosed with cystic fibrosis, and at the time, I honestly had no idea what it was or what I meant. The CF team at Children’s did a fantastic job teaching us about the disease, and making sure I knew about therapies and meds, but they always made […]

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Conlee’s Cystic Fibrosis Battle

Conlee was born a seemingly healthy 7lb 9oz baby boy. We took him home from the hospital with the assumption that he was going to thrive. At his first pediatrician appointment, he had not gained any weight back and had actually lost a little more. They decided to bring him back a few days later. […]

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