condition: Duchenne Muscular Dystrophy

James’ Story

It was such a happy day when perfectly beautiful baby James entered this world. It was the beginning of a new life, a new adventure. No one expected that all of that would change just a mere 3 months later. It was then that the newborn screening results were revealed to James’ parents; Duchenne Muscular Dystrophy […]

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Alex’s Story

Alex and his family’s journey began in early July, 2015. Over the past year, Alex hadn’t been growing at the pace of his peers, wasn’t able to jump or ride a bike yet, and shuffled his feet instead of taking a full stride when he ran. Most concerning, was his difficulty on the stairs. Alex […]

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Ryan’s Story

The Vaishs have endured everything from blizzards to exploding plane engines to travel several times a month from Los Angeles to Nationwide Children’s Hospital in Columbus, Ohio. The motivation: their loving and spirited 12 year-old son Ryan, and finding a way to slow down the devastating muscle-wasting disease that threatens his life. “I kind of […]

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Andrew’s Story

“Your son has Duchenne Muscular Dystrophy.” Those were the devastating words Andrew’s parents, Jodi and Mitch, heard when Andrew was just 3 years old. Their son had a neuromuscular disorder characterized by progressive muscle degeneration and weakness. It was hard for them to have hope. Andrew was immediately referred to the Muscular Dystrophy Clinic to […]

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Billy’s Story

At the age of 5, Billy was diagnosed with Duchenne Muscular Dystrophy (DMD), a terminal degenerative muscular disease. Billy understands DMD enough to know that his muscles are sick, but remains as happy as ever. It is with the utmost grace and class that Billy continues to accept his limitations and not let them define […]

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