Izabella S.
Age: 9 Years | Small bowel atresia
condition: Epilepsy
Mighty Mason
In January of 2014, Mason (3), was recovering from the stomach flu. It wasn’t until our efforts to treat dehydration symptoms were unsuccessful that we became concerned. A trip to his pediatrician lead to an EEG which landed us in the Neurology department at Nationwide Children’s Hospital. At this time, Mason was diagnosed with Partial […]
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Miracle For Malia
We started noticing seizures at 18 months. She finally was able to see a Neurologist at age 3. Her seizures are in her sleep. She had her first Epilepsy surgery in 2013. That got rid of the old seizures, but everything shifted and brought on new ones. We then tried the VNS. She’s exhausted all […]
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Jacob’s Story
Jacob was born on October 21st, 2011. Around 10 months I started noticing that he wasn’t acting right and right away I made a doctors appointment, the doctors referred us to Nationwide Children’s. Right away they started doing some tests, blood work, MRI and EEG. When tests came back the Neurology doctor came in and […]
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Maggie “Monkey”
Maggie was my youngest of three kiddos. Her brother Dan (20) is the oldest, Mary Kate (18) is right in the middle and Mag just turned 16 in September. Being the baby, Maggie was often the center of attention. Maggie has Lennox Gastaut Syndrome, a severe form of epilepsy. She didn’t get that diagnosis until […]
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Roger Michael’s Story
When Mikey was 17 months old, he was diagnosed with epilepsy. That day he began his journey of many therapies and treatments for his condition and developmental delays at The Division of Child Neurology at Nationwide Children’s Hospital, a leading national program with specialists that are experts in treating a broad range of pediatric neurological […]
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The Medical Journey of Rare Disease
On October 30th 2016, after a full term, healthy pregnancy, we welcomed our precious Baby Boy Braxton into this world! Our excitement over the birth of our newborn baby would quickly diminish, being replaced with constant worry and fear, as immediately after birth Braxton began showing adverse neurological signs and with many other health complications. We […]
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Gaige’s Story
Stopping Gaige’s Seizures If he stayed up late, Gaige had a seizure. When he got too excited about an upcoming family event, the arrival of Christmas or his birthday, he had a seizure. If he exerted himself while playing basketball, he had a seizure. When the seizures started at 3 years old, Gaige had a […]
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Kaylin’s Story
It’s hard to believe that life can be complicated when you are only 4-months old. But it can be. That’s when Kaylin Williams first began having seizures. Within a month, she had developed a second type of seizure. What followed was a year-and-a-half of treatment. During this time, Kaylin also experienced delays in her development […]
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Hailey’s Story
Hailey had her first seizure when she was just 18 months old. By the time she was a toddler, she was having 30 to 40 seizures a day. Diagnosed with medically intractable treatment-resistant epilepsy, Hailey’s family says they lived life in a bubble because they never knew when the next seizure would come or how […]
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