Asher T.
Age: 10 Years | Cleft Lip
condition: Hypoplastic Left Heart Syndrome
Deacon’s Story
Deacon was just 10 days old when he had his first open heart surgery. Deacon was born with Hypoplastic Left Heart Syndrome (HLHS) which is a condition where the left side chambers of the heart develop too small to work effectively. This is a problem because the left side of the heart pumps blood to […]
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Charlie’s Story
The day after Charlie was born, his pediatrician found something wrong with his heart. Charlie was transferred to Nationwide Children’s where he was diagnosed with Hypoplastic Left Heart Syndrome. His parents learned that in order for their son to survive, he would need three open-heart surgeries before he was three years old. They were terrified. […]
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Mighty Mila
Jacob and Kayla were twelve weeks pregnant when they went in for their prenatal genetic screening. “We were very excited to get into things like paint colors for our daughter,” says Jacob. “And then we found out from the test that there was a possible abnormality in the left side of our daughter’s heart.” At […]
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Our little miracle
Jordan was born with HLHS. Although we had no idea until he was a day old. He was life flighted to Children’s after he kept failing his CHD screen. He underwent his first surgery at just 5 days old. He then needed a cath procedure done about a week and half later. We spent a […]
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Little Lion Laith
Laith was born with Hypoplastic Left Heart Syndrome, a complex congenital heart defect where the structures on the left side of the heart are small and underdeveloped. Laith and his family came to Nationwide Children’s Hospital from their home in Maryland for his treatment to seek care from Dr. Mark Galantowicz and his team, as […]
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Mr. Miracle
On December 29th,2016 at my 21 week check up we found out our little boy had HLHS. I never even heard of it. We then got sent to OSU for a double check. While we were there, we found out our son had heterotaxy as well. I had never heard of either disease till that […]
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Walker’s Story
The bond between a baby and their mother begins much before the first tear, the first counting of toes, and the first sweet smile. For Walker, that bond strengthened dramatically during his mother’s 20-week ultrasound when Tabatha learned the fate of her baby in 4 words – hypoplastic left heart syndrome. Within a few days […]
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Trevan’s Heart Journey
Ashley was 24 weeks along when she received the life-shattering news that her unborn baby, Trevan, had a severe heart defect and would need three complex heart surgeries in his future. Ashley and Trevan’s Dad, J.D., were shocked, but immediately began researching about their son’s condition to prepare for his arrival. Trevan was born with […]
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Aaron’s Story
When you learn the long list of Aaron’s diagnoses, probably the last thing you would expect to hear are the words his mom, Jamie, uses to describe her son: “Aaron is a thriving 9-year-old boy.” But when you meet Aaron in person that is exactly who you will see. Aaron was born with Hypoplastic Left […]
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