condition: Marfan Syndrome

Life with Marfan Syndrome and Children’s Hospital

At my 2 year check up my family doctor noticed a murmur. He then sent me to Children’s Hospital for further testing. I was diagnosed with Marfan Syndrome. My condition effects all the connective tissue in my body. I’ve had eye surgery to remove my dislocated lens, back surgery to place Harrington rods for scoliosis, […]

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