condition: Mitochondrial Encephalomyopathies

Levi’s Legacy

Levi’s Mother, Dawnta, had been told that she had cerebral palsy, most of her life. She had Levi on September 30, 2012, when she was 24 years old, while she was living in Florida. Levi was a beautiful, baby boy, who weighed 7 pounds, 5 ounces. Florida does different newborn screening and found that Levi […]

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Courageous Keith

Keith’s story is not an easy one to tell, or even understand. He was born on August 6th, 2015. His head full of hair and soft cheeks filled the room with joy and love. We knew Keith had Cerebellar Hypoplasia so we were scheduled to have a brain MRI done at Nationwide Children’s a few […]

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