Julia .
Behavioral Health
condition: Neurological Disorders
The Medical Journey of Rare Disease
On October 30th 2016, after a full term, healthy pregnancy, we welcomed our precious Baby Boy Braxton into this world! Our excitement over the birth of our newborn baby would quickly diminish, being replaced with constant worry and fear, as immediately after birth Braxton began showing adverse neurological signs and with many other health complications. We […]
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Jaxsyn’s Journey
Jaxsyn was born with Miller Dieker Syndrome (lissencephaly), a rare disorder confirmed with genetic testing. He spent the first 60 days of his life in the NICU trying to figure out how to live day-to-day life. His aspirations are silent so he got a G-tube placed and had multiple complications with it which resulted in […]
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