condition: Short Bowel Syndrome

Decko the Competitor

Decko was born at 33 weeks and spent time in the Neonatal Intensive Care Unit (NICU). He was then diagnosed with necrotizing entercolitis (NEC), which is a disease of the intestine of newborn infants. Decko has been through a lot but that hasn’t stopped him from being a happy kid! He’s probably spent more time […]

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Bo’s Story

Bo was born in Inner Mongolia, where he was found abandoned as a newborn with both his bladder and part of his bowel outside of an opening in his belly. He spent nearly 4 years of his life in a medical orphanage in Beijing, having endured many undocumented surgeries in China. He was adopted by […]

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Cami’s Story

On May 20, 2013, Cami was born via emergency c-section at 25 weeks and 2 days gestation weighing just  1 lb. 7 oz. The larger of our identical twin girls, she had an incredibly rough start and was given chest compressions in the delivery room. When our daughters were just 9 days old, we lost […]

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