condition: Short Bowel Syndrome

Bo’s Story

Bo was born in Inner Mongolia, where he was found abandoned as a newborn with both his bladder and part of his bowel outside of an opening in his belly. He spent nearly 4 years of his life in a medical orphanage in Beijing, having endured many undocumented surgeries in China. He was adopted by […]

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Decko the Competitor

Decko was born at 33 weeks and spent time in the Neonatal Intensive Care Unit (NICU). He was then diagnosed with necrotizing entercolitis (NEC), which is a disease of the intestine of newborn infants. Decko has been through a lot but that hasn’t stopped him from being a happy kid! He’s probably spent more time […]

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Cami’s Story

On May 20, 2013, Cami was born via emergency c-section at 25 weeks and 2 days gestation weighing just  1 lb. 7 oz. The larger of our identical twin girls, she had an incredibly rough start and was given chest compressions in the delivery room. When our daughters were just 9 days old, we lost […]

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