Evan’s Story

Evan’s story began before he was born when an amniocentesis revealed that there were problems with his heart. “Within two weeks we had our first appointment at Nationwide Children’s Hospital Cardiology Clinic for a fetal echo.  During that visit we met with Dr. John Wheller who told us Evan had a very complex heart defect called Double Outlet Right Ventricle with a large VSD, Transposition of the Great Arteries and Ventricular Inversion.  He explained that Evan had all the pieces and parts of his heart but they were in all the wrong places.  Both of his great arteries were coming off of the top of the right ventricle and they were transposed meaning they were pumping oxygenated blood to the wrong chambers and into his lungs.  To complicate things further, Dr. Wheller said Evan’s ventricles were twisted and sitting on top of each other instead of side by side.  He said Evan would need open heart surgery shortly after his birth,” says Evan’s mom, Kim.

At 12:59 a.m. on June 18, 2010, Evan was born weighing 4lbs 13ozs and 16 ½ inches long and was transferred to the NICU at Nationwide Children’s Hospital.  When Evan was 4 days old his parents learned that he would need a series of three surgeries called the Fontan procedure.  The next day Evan had his first open heart surgery. He spent the next months at home on oxygen and then, when he was 5-½ months old Evan underwent his second surgery. Evan’s third surgery was to take place when he was two, but this time there were some delays as Evan failed the pre-admission testing five times.  Finally in late February 2013 he was virus free and surgery was scheduled for March 6, 2013. The surgery went smoothly, but Evan had some difficulties afterward and remained in the hospital for 13 days.  It could have been longer, but Evan was told the more he got up and walked the quicker he would be discharged home.  “Evan loved to walk the halls.  He figured out very quickly that every time he passed a nurses station he got a toy and after two laps around the unit Cyril would give him a Popsicle,” Kim says.

Evan continues to be monitored by his team at Nationwide Children’s and his growing and thriving. “You would truly not know he has any medical issues until he shows off his surgical scars and his ‘superhero power box’ (pacemaker),” adds Kim.

Evan’s early days of training, walking the hospital halls, and his current training in Tae Kwan Do will make him the perfect coach to cheer on the participants who will pass through his mile at the Nationwide Children’s Hospital Columbus Marathon & ½ Marathon.

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Evan’s story began before he was born when an amniocentesis revealed that there were problems with his heart. “Within two weeks we had our first appointment at Nationwide Children’s Hospital Cardiology Clinic for a fetal echo.  During that visit we met with Dr. John Wheller who told us Evan had a very complex heart defect called Double Outlet Right Ventricle with a large VSD, Transposition of the Great Arteries and Ventricular Inversion.  He explained that Evan had all the pieces and parts of his heart but they were in all the wrong places.  Both of his great arteries were coming off of the top of the right ventricle and they were transposed meaning they were pumping oxygenated blood to the wrong chambers and into his lungs.  To complicate things further, Dr. Wheller said Evan’s ventricles were twisted and sitting on top of each other instead of side by side.  He said Evan would need open heart surgery shortly after his birth,” says Evan’s mom, Kim.

At 12:59 a.m. on June 18, 2010, Evan was born weighing 4lbs 13ozs and 16 ½ inches long and was transferred to the NICU at Nationwide Children’s Hospital.  When Evan was 4 days old his parents learned that he would need a series of three surgeries called the Fontan procedure.  The next day Evan had his first open heart surgery. He spent the next months at home on oxygen and then, when he was 5-½ months old Evan underwent his second surgery. Evan’s third surgery was to take place when he was two, but this time there were some delays as Evan failed the pre-admission testing five times.  Finally in late February 2013 he was virus free and surgery was scheduled for March 6, 2013. The surgery went smoothly, but Evan had some difficulties afterward and remained in the hospital for 13 days.  It could have been longer, but Evan was told the more he got up and walked the quicker he would be discharged home.  “Evan loved to walk the halls.  He figured out very quickly that every time he passed a nurses station he got a toy and after two laps around the unit Cyril would give him a Popsicle,” Kim says.

Evan continues to be monitored by his team at Nationwide Children’s and his growing and thriving. “You would truly not know he has any medical issues until he shows off his surgical scars and his ‘superhero power box’ (pacemaker),” adds Kim.

Evan’s early days of training, walking the hospital halls, and his current training in Tae Kwan Do will make him the perfect coach to cheer on the participants who will pass through his mile at the Nationwide Children’s Hospital Columbus Marathon & ½ Marathon.

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