Jaeya was almost 3 years old when we adopted her from China. She was born in a Northern Province that gets very cold. I can’t imagine how being born in January and left at the coal train how she survived even a few hours. She was born with Anal Atresia and needed surgery immediately to be able to have bowel function. Before we picked her up, the orphanage told us she had some smearing in her diaper. When we brought her to our hotel, her stomach was very large and we had to give her miralax to unplug her. She was like this most of her lifetime I assume. So once home, I noticed when I changed her that she had feces coming out her girl parts and so we made an appointment with Nationwide Children’s Hospital. We were told she did have a vaginal fistula and needed a partial redo for the scar tissue on the anus. After surgery, the Colorectal Team told us she had a vaginal septum which divided the vagina into two and she also had two fistulas! Of course it was repaired and we found out through other tests that she also had a malformation in her head and so we went home thankful she didn’t need dilations. After about 6 weeks, I noticed her anus was getting smaller. We went back for a check up and her Chiari surgery and they were looking at both in the same day. She had the extra bone removed from the back of her head and the Colorectal Team saw she was stricturing in her anus, so we had to start dilations. Both surgeries were successful and she is now healed and has no issues with either. She does have to take exlax everyday to go to the bathroom regularly and we sometimes have to tweak that a little, but overall it is good. She took longer to potty train, but she now wears underwear full time and is doing well in preschool. It will be something we have to watch and help her with until she is old enough to do it herself, but she is happy and we are so grateful she is our daughter.

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• Name: Jaeya S.Jaeya Secker
• Condition(s): Anorectal malformations, Chiari Malformations
• Age at Treatment: 41 months
• Age Today: 01/03/201212 Years

Jaeya was almost 3 years old when we adopted her from China. She was born in a Northern Province that gets very cold. I can’t imagine how being born in January and left at the coal train how she survived even a few hours. She was born with Anal Atresia and needed surgery immediately to be able to have bowel function. Before we picked her up, the orphanage told us she had some smearing in her diaper. When we brought her to our hotel, her stomach was very large and we had to give her miralax to unplug her. She was like this most of her lifetime I assume. So once home, I noticed when I changed her that she had feces coming out her girl parts and so we made an appointment with Nationwide Children’s Hospital. We were told she did have a vaginal fistula and needed a partial redo for the scar tissue on the anus. After surgery, the Colorectal Team told us she had a vaginal septum which divided the vagina into two and she also had two fistulas! Of course it was repaired and we found out through other tests that she also had a malformation in her head and so we went home thankful she didn’t need dilations. After about 6 weeks, I noticed her anus was getting smaller. We went back for a check up and her Chiari surgery and they were looking at both in the same day. She had the extra bone removed from the back of her head and the Colorectal Team saw she was stricturing in her anus, so we had to start dilations. Both surgeries were successful and she is now healed and has no issues with either. She does have to take exlax everyday to go to the bathroom regularly and we sometimes have to tweak that a little, but overall it is good. She took longer to potty train, but she now wears underwear full time and is doing well in preschool. It will be something we have to watch and help her with until she is old enough to do it herself, but she is happy and we are so grateful she is our daughter.