Kaylin’s Story

It’s hard to believe that life can be complicated when you are only 4-months old. But it can be. That’s when Kaylin Williams first began having seizures. Within a month, she had developed a second type of seizure. What followed was a year-and-a-half of treatment. During this time, Kaylin also experienced delays in her development requiring physical, occupational and speech therapies which she received through Nationwide Children’s Hospital outpatient therapy services.

When Kaylin was 2, she developed an infection in her cerebral spinal fluid and was admitted to the hospital for 6 weeks, requiring continued treatment when she was able to go home. Several months later, little Kaylin returned to NCH and underwent a large resection of the right side of her brain and placement of titanium mesh where bone had disintegrated. She was, again, in the hospital for 6 weeks, mainly on the in-patient therapy floor recovering and re-learning to walk and use her left arm and hand. In November 2013, Kaylin returned to Nationwide Children’s for replacement of the temporary titanium mesh with a permanent plate.

Comprehensive pediatric epilepsy care requires unique specialists, leading technology and a multidisciplinary team. The National Association of Epilepsy Centers has accredited The Epilepsy Center at Nationwide Children’s Hospital as a level-four epilepsy program—the highest level of epilepsy care. In addition to standard services, the Center provides complex neurodiagnostic monitoring as well as neuropsychological and psychosocial evaluation and treatment. The level-four designation also means offering advanced epilepsy surgery services, including evaluation with intracranial electrodes.

“Nationwide Children’s Hospital to our family means comfort, care and hope. Our family is comforted with the knowledge that we have such a wonderful organization right in our back yard. Throughout Kaylin’s journey, Nationwide Children’s was close by to answer our questions and treat her as needed. We are thankful that we have not had to uproot our family in order to seek the treatment that our daughter needs for her epilepsy. We cannot say enough about the care of the doctors, therapists, nurses, PCA’s and other staff that have worked with our daughter (and us!) during all of her stays and visits at Nationwide Children’s,” says Kaylin’s mom, Stacey.

Today, 4-year old Kaylin’s life is less complicated than when she was 4-months old. Despite the surgeries, Kaylin continues to experience break-through seizures, but the seizures are now less severe and less frequent. “Our family remains hopeful that one day, with the help of Nationwide Children’s Hospital, Kaylin will gain control of her seizures and close the gap in her development delays,” says Stacey.

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  • Name: Kaylin W.Kaylin Williams
  • Condition(s): Epilepsy
  • Age at Treatment: 4 months
  • Age Today: 12/12/20125 Years

It’s hard to believe that life can be complicated when you are only 4-months old. But it can be. That’s when Kaylin Williams first began having seizures. Within a month, she had developed a second type of seizure. What followed was a year-and-a-half of treatment. During this time, Kaylin also experienced delays in her development requiring physical, occupational and speech therapies which she received through Nationwide Children’s Hospital outpatient therapy services.

When Kaylin was 2, she developed an infection in her cerebral spinal fluid and was admitted to the hospital for 6 weeks, requiring continued treatment when she was able to go home. Several months later, little Kaylin returned to NCH and underwent a large resection of the right side of her brain and placement of titanium mesh where bone had disintegrated. She was, again, in the hospital for 6 weeks, mainly on the in-patient therapy floor recovering and re-learning to walk and use her left arm and hand. In November 2013, Kaylin returned to Nationwide Children’s for replacement of the temporary titanium mesh with a permanent plate.

Comprehensive pediatric epilepsy care requires unique specialists, leading technology and a multidisciplinary team. The National Association of Epilepsy Centers has accredited The Epilepsy Center at Nationwide Children’s Hospital as a level-four epilepsy program—the highest level of epilepsy care. In addition to standard services, the Center provides complex neurodiagnostic monitoring as well as neuropsychological and psychosocial evaluation and treatment. The level-four designation also means offering advanced epilepsy surgery services, including evaluation with intracranial electrodes.

“Nationwide Children’s Hospital to our family means comfort, care and hope. Our family is comforted with the knowledge that we have such a wonderful organization right in our back yard. Throughout Kaylin’s journey, Nationwide Children’s was close by to answer our questions and treat her as needed. We are thankful that we have not had to uproot our family in order to seek the treatment that our daughter needs for her epilepsy. We cannot say enough about the care of the doctors, therapists, nurses, PCA’s and other staff that have worked with our daughter (and us!) during all of her stays and visits at Nationwide Children’s,” says Kaylin’s mom, Stacey.

Today, 4-year old Kaylin’s life is less complicated than when she was 4-months old. Despite the surgeries, Kaylin continues to experience break-through seizures, but the seizures are now less severe and less frequent. “Our family remains hopeful that one day, with the help of Nationwide Children’s Hospital, Kaylin will gain control of her seizures and close the gap in her development delays,” says Stacey.

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