Kolby’s Story

Each of the daughters in the Sherick household has a special birth quote. Kolby’s is “Even the smallest flower can hold the most beauty.” Her unique beauty is made all the rarer by her diagnosis of a genetic condition called Langer-Giedion Syndrome (LGS).

As soon as Kolby was delivered she was transported to Nationwide Children’s Hospital NICU. Tests run during Kolby’s 23-day stay here revealed the diagnosis of LGS which affects overall hair growth, abnormal growth of bone ends and bony growths around her body. Kolby grows very slowly and her overall facial features make her stand apart in the crowd – just like an unusual flower.

The Genetics Clinic at Nationwide Children’s Hospital provides diagnostic evaluations for patients with known or suspected genetic diseases, genetic and prenatal counseling for families and treatment of genetic disorders. As one of the nation’s largest not-for-profit freestanding pediatric healthcare networks, Nationwide Children’s provides wellness, preventive, diagnostic, treatment and rehabilitative care for infants, children and adolescents, as well as adult patients with congenital disease. For kids like Kolby, this is really important.

Kolby has spent a lot of time at Nationwide Children’s Hospital. She has had surgeries for hip dysplasia, removal of an 11th finger, an umbilical herniaear tubes and reconstructive surgery to her thumb. Kolby tends to not do very well with anesthesia after surgery, so she usually has to stay in the hospital longer than usual.

“The doctors were always honest with us and would stop in just to check in during other parts of the day. The nurses have taken a true interest and love in our family and we always seem to feel like a favorite,” says Kolby’s mom, Jennifer.

And Kolby has a lot of favorites of her own. She loves pizza, olives, pretzels, Mickey Mouse and Elmo. And she loves to do things all by herself. Participants who come through Kolby’s mile will no doubt get a burst of energy when they meet this flowery little girl with a beautifully big personality.

 

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  • Name: Kolby S.Kolby Sherick
  • Condition(s): Langer Giedion Syndrome
  • Age at Treatment: 5 years
  • Age Today: 11/24/201011 Years

Each of the daughters in the Sherick household has a special birth quote. Kolby’s is “Even the smallest flower can hold the most beauty.” Her unique beauty is made all the rarer by her diagnosis of a genetic condition called Langer-Giedion Syndrome (LGS).

As soon as Kolby was delivered she was transported to Nationwide Children’s Hospital NICU. Tests run during Kolby’s 23-day stay here revealed the diagnosis of LGS which affects overall hair growth, abnormal growth of bone ends and bony growths around her body. Kolby grows very slowly and her overall facial features make her stand apart in the crowd – just like an unusual flower.

The Genetics Clinic at Nationwide Children’s Hospital provides diagnostic evaluations for patients with known or suspected genetic diseases, genetic and prenatal counseling for families and treatment of genetic disorders. As one of the nation’s largest not-for-profit freestanding pediatric healthcare networks, Nationwide Children’s provides wellness, preventive, diagnostic, treatment and rehabilitative care for infants, children and adolescents, as well as adult patients with congenital disease. For kids like Kolby, this is really important.

Kolby has spent a lot of time at Nationwide Children’s Hospital. She has had surgeries for hip dysplasia, removal of an 11th finger, an umbilical herniaear tubes and reconstructive surgery to her thumb. Kolby tends to not do very well with anesthesia after surgery, so she usually has to stay in the hospital longer than usual.

“The doctors were always honest with us and would stop in just to check in during other parts of the day. The nurses have taken a true interest and love in our family and we always seem to feel like a favorite,” says Kolby’s mom, Jennifer.

And Kolby has a lot of favorites of her own. She loves pizza, olives, pretzels, Mickey Mouse and Elmo. And she loves to do things all by herself. Participants who come through Kolby’s mile will no doubt get a burst of energy when they meet this flowery little girl with a beautifully big personality.

 

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