When I was 19 weeks pregnant, my husband and I went in for a routine ultrasound at our local hospital and something seemed to be wrong. The ultrasound tech kept viewing the heart over and over and then decided to go get the radiologist. I immediately saw my OBGYN following the ultrasound and she told us that they could not visualize any chambers of the heart and that she was scheduling us an appointment with a specialist at Ohio State Wexner Medical Center. My husband and I were devastated. Everything was going through our minds of what could be wrong. We only waited a week to see the specialist but it seemed like a year. After seeing a specialist at OSU and having a fetal echo, it was determined that Kynlee had double outlet right ventricle (DORV). At that point, we were set up with the cardiology team at NCH for further echocardiograms and to speak with the Cardiothoracic surgeon. We then found out Kynlees heart was much more complex. Along with DORV, Kynlee has pulmonary stenosis, ASD, VSD, cross cross AV valves, dectrocardia and congenitally corrected transposition of the great arteries. The next 20 weeks went by so slow. My husband and I are both nurses which made it worse for both of us at this time. Multiple doctor visits and fear of the unknown filled the time. I was so impressed with the cardiovascular team at NCH. The team was very proactive in the prenatal period preparing us for the worst but hoping for the best outcome possible.
On 9/9/2014 I went into labor at home (2 hours south of Columbus). I was unable to make it to OSU and delivered at my home hospital. The flight team was able to be in the delivery room when I had Kynlee. We had prepared for her to have surgery immediately after birth but she shocked us all and did not require the surgery. She was admitted to CTICU where Dr. Joy (her favorite doctor) took excellent care of her. Our first experience at NCH was a great one. The team put us at ease with their wisdom and exceptional care. At 9 days old she was able to come home requiring only a tiny bit of oxygen. She was monitored by the home monitoring team which saved her from having surgery prior to the Glenn procedure. At 5 months old Dr. Glantowicz performed Kynlee’s first surgery, the Glenn procedure. A year later she is still thriving and doing amazing. We are so thankful to the Cardiology team at NCH for the ongoing care that they have provided our daughter. Kynlee is 19 months old and has 4 older sisters! She loves playing with her sisters and watching Peppa Pig. She will be facing another open heart surgery later this year.