Strong Brave Girl

At 20 weeks pregnant Kiely’s mom had to go have a fetal echo done at Nationwide Children’s Hospital due to her older brother being born with multiple Congenital Heart Defects. It was discovered then that Kiely had an Aortic Coarctation. We were told that we would need to come back in 4 weeks to recheck her heart and make a plan.

At 24 weeks they saw that the left side of Kiely’s heart was not the size it needed to be and that she would definitely have to have corrective surgery. At that appointment we also found out that Kiely had Turner Syndrome. We toured the NICU and made a plan for her arrival. Kiely was induced at 36 weeks due to stress. Within 4 hours she was taken to Children’s.

Twenty-four hours later her mom was able to go see her. She spent 5 days in an isolette and on the fifth day the BEST NICU nurse in the world allowed us to hold Kiely after securing her UAC line. Three days later she had her first surgery by Dr. Phillips. The surgery lasted 9 hours. Dr. Phillips was able to completely repair her aorta and closed her PDA and her VSD. She then spent 2 nights in PICU and was moved on day 10 to the cardiac step down unit. She spent another 12 days there before being sent home. We were so very blessed to have such a wonderful hospital with such wonderful nurses and doctor. Our time in the NICU, PICU and step down unit could have been miserable. The nurses became family and people that to this day we still talk about very fondly. The love and care they showed to Kiely while we couldn’t be at the hospital was more than we could have imagined. Diane allowing me to hold my 5-day-old for the first time made such an impact on us. She understood how hard it was to just look at her and touch her; she understood how important it was to Kiely’s healing to be held.

There is not a bad thing we can say about this hospital. Kiely has had a long road so far and it is far from over however, we know we have such a great support in this hospital that we know we can make it. She has been made to feel a big part of all her appointments and is included in all conversations with her doctors.

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At 20 weeks pregnant Kiely’s mom had to go have a fetal echo done at Nationwide Children’s Hospital due to her older brother being born with multiple Congenital Heart Defects. It was discovered then that Kiely had an Aortic Coarctation. We were told that we would need to come back in 4 weeks to recheck her heart and make a plan.

At 24 weeks they saw that the left side of Kiely’s heart was not the size it needed to be and that she would definitely have to have corrective surgery. At that appointment we also found out that Kiely had Turner Syndrome. We toured the NICU and made a plan for her arrival. Kiely was induced at 36 weeks due to stress. Within 4 hours she was taken to Children’s.

Twenty-four hours later her mom was able to go see her. She spent 5 days in an isolette and on the fifth day the BEST NICU nurse in the world allowed us to hold Kiely after securing her UAC line. Three days later she had her first surgery by Dr. Phillips. The surgery lasted 9 hours. Dr. Phillips was able to completely repair her aorta and closed her PDA and her VSD. She then spent 2 nights in PICU and was moved on day 10 to the cardiac step down unit. She spent another 12 days there before being sent home. We were so very blessed to have such a wonderful hospital with such wonderful nurses and doctor. Our time in the NICU, PICU and step down unit could have been miserable. The nurses became family and people that to this day we still talk about very fondly. The love and care they showed to Kiely while we couldn’t be at the hospital was more than we could have imagined. Diane allowing me to hold my 5-day-old for the first time made such an impact on us. She understood how hard it was to just look at her and touch her; she understood how important it was to Kiely’s healing to be held.

There is not a bad thing we can say about this hospital. Kiely has had a long road so far and it is far from over however, we know we have such a great support in this hospital that we know we can make it. She has been made to feel a big part of all her appointments and is included in all conversations with her doctors.

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