condition: Congenital Myasthenic Syndrome

Boubacar’s Story

Like many 9-year-old boys, Boubacar loves robots and playing games on his iPad. Unlike most other boys, Boubacar has Congenital Myasthenic Syndrome, a rare genetic muscle disease that steals his ability to walk. It doesn’t seem that long ago things were different for Boubacar. He was living in West Africa and didn’t know he had […]

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