condition: Hypokalemic Periodic Paralysis

Jessi’s Journey

I am a rare disease warrior. I fight every day of my life to do simple things others take for granted. I have Hypokalemic Periodic Paralysis & Ehlers Danlos Syndrome. Hypokalemic Periodic Paralysis is a rare neuromuscular disease that affects only 1 in 200,000 and there is no cure. My potassium quickly moves from my […]

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Jessica’s Story

One day, Jessica was a typical healthy and active teenager. That changed suddenly one evening when she felt her heart racing, she had a headache, was nauseous, and her legs were hurting and were so weak she was shaking and could hardly stand. At the local Emergency Room, her family learned that Jessica’s potassium level […]

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Jessi’s Journey with Hypokalemic Periodic Paralysis

I am a Zebra. I have a rare neuromuscular disease. Doctors are trained that “If you hear hoof beats, think horses not zebras”. The neurology department at Nationwide looked past the obvious and listened to my story. They took into account all of my symptoms, my medical records, my previous tests and discovered that I […]

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