condition: CHARGE Syndrome

Ava’s Story

Ava’s first hours of life were unexpectedly challenging. Within 12 hours of birth Ava was experiencing abnormally rapid breathing and discolored patchy skin. An echocardiogram revealed she had multiple congenital heart defects as well as Bronchopulmonary Dysplasia (BPD), a form of chronic lung disease. This came as a shock to Ava’s family since none of […]

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Our Miracle

Reed was a miracle from the beginning. We found out at 17 weeks gestation that he had some medical issues. Upon delivery, Reed was immediately transported to Nationwide Children’s Hospital where he stayed for the next 206 days. During that 7 months, Reed stole the hearts of NICU nurses and doctors alike. He had many […]

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