Life with Marfan Syndrome and Children’s Hospital

At my 2 year check up my family doctor noticed a murmur. He then sent me to Children’s Hospital for further testing. I was diagnosed with Marfan Syndrome. My condition effects all the connective tissue in my body. I’ve had eye surgery to remove my dislocated lens, back surgery to place Harrington rods for scoliosis, and heart surgery to replace my aortic valve with a mechanical one. I had all of these done at Children’s. I am lucky enough to still see my cardiologist, Dr. Sharon Roble even though I am well past childhood and into my thirties. Before seeing Dr. Roble I had the pleasure of being treated by Dr. Douglas Teske in cardiology. With the help of amazing doctors like Dr. Roble I was able to safely have two beautiful boys. She took great care and put in great effort to make sure I made it through both pregnancy without dangerous complications. Children’s Hospital along with their amazing doctors and nurses have saved my life over and over again. I don’t know where I would be or if I would even still be here today if it weren’t for their efforts.
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  • Name: Samantha M.Samantha Malone
  • Condition(s): Marfan Syndrome
  • Age at Treatment: 2 years of age
  • Age Today: 06/21/198533 Years

At my 2 year check up my family doctor noticed a murmur. He then sent me to Children’s Hospital for further testing. I was diagnosed with Marfan Syndrome. My condition effects all the connective tissue in my body. I’ve had eye surgery to remove my dislocated lens, back surgery to place Harrington rods for scoliosis, and heart surgery to replace my aortic valve with a mechanical one. I had all of these done at Children’s. I am lucky enough to still see my cardiologist, Dr. Sharon Roble even though I am well past childhood and into my thirties. Before seeing Dr. Roble I had the pleasure of being treated by Dr. Douglas Teske in cardiology. With the help of amazing doctors like Dr. Roble I was able to safely have two beautiful boys. She took great care and put in great effort to make sure I made it through both pregnancy without dangerous complications. Children’s Hospital along with their amazing doctors and nurses have saved my life over and over again. I don’t know where I would be or if I would even still be here today if it weren’t for their efforts.

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