Adelaide P.
Age: 8 Years | Atrial Septal Defect
condition: Batten Disease
Layla’s Story
Layla was born healthy and beautiful. As she grew, Layla achieved milestone after milestone, singing her ABC’s, counting and playing. She was smart and full of infectious energy. Her parents, Kerry and Maria, were joyful watching Layla and her big brother Maddux spend time together. Even Casey, the family dog, joined in, always giving Layla […]
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Tayla’s Story
Up until the age of three and a half, Tayla lived a happy and normal life in her beautiful home country of Australia. It was around this time she began having unexplained seizures. After four difficult months of testing and ongoing seizures, Tayla received her diagnosis of Batten disease. Her parents were devastated. Their beautiful, […]
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