condition: Down Syndrome

Sebastian’s Story

On the very day Sebastian arrived in this world he began his journey to overcome extreme challenges.  He was born with trisomy 21 (Down syndrome), a significant cardiac lesion (atrioventricular canal defect), chronic respiratory failure requiring tracheostomy, pulmonary hypertension and duodenal stenosis. He spent the first seven months of his life at Nationwide Children’s Hospital. When he was finally able to […]

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Halle’s Story

Halle is a vibrant, social butterfly of a 13-year-old girl. She enjoys being around her friends and classmates. She loves loud music. She is an active Girl Scout Cadette and the Manager for her 7th grade Football Cheer Squad. She has a love for McDonald’s chicken nuggets, BBQ ribs and strawberry ice cream. When Halle’s […]

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Ledarius’ Story

LeDarius was born in Marion, Ohio, and transported to Nationwide Children’s Hospital at just 24 hours old. At birth, his physicians suspected he may have Down syndrome. Two days later, test confirmed he not only had Down syndrome but congenital heart defects as well. In his 37 days spent in the Neonatal Intensive Care Unit, […]

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Down Right Perfect

When Norah was 1 day old she was diagnosed with Down Syndrome- Robertsonian Translocation, to be specific. We were so overwhelmed with the news as we had no idea until this day. Following her diagnosis, our pediatrician recommended an ECHO and EKG to determine if Norah had any heart issues. When Norah was 2 1/2 […]

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Izzy’s Story

Izabella, known as “Izzy,” has been loved fiercely by her mama and mommy long before she was even born. Izzy’s moms, Ashley and Kelly, found out about Izzy when her birth mother was 12 weeks pregnant. They knew right away that Izzy belonged in their family and that they needed to adopt her. At 16 […]

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