Sebastian’s Story

On the very day Sebastian arrived in this world he began his journey to overcome extreme challenges.  He was born with trisomy 21 (Down syndrome), a significant cardiac lesion (atrioventricular canal defect), chronic respiratory failure requiring tracheostomy, pulmonary hypertension and duodenal stenosis. He spent the first seven months of his life at Nationwide Children’s Hospital. When he was finally able to go home, he still required 24-hour care.

“Being in the world of medically fragile children is like nothing I can describe well enough, but I can say that the bravery that these children are born with is amazing! They don’t know to be strong or fight but they do. They fight harder than I have even seen anyone fight before, yet they don’t even know the battle or the players,” says Sebastian’s mom, Shannon.

Nationwide Children’s Hospital is here to fight for kids like Sebastian. We provide state-of-the-art pediatric care for one million patient visits annually while remaining true to our mission to provide the highest quality of care to all children and their families regardless of ability to pay. We are one of the nation’s largest not-for-profit freestanding pediatric healthcare networks providing wellness, preventive, diagnostic, treatment and rehabilitative care for infants, children and adolescents, as well as adult patients with congenital disease. Our multidisciplinary team of experts is committed to ensuring that every child be able to reach their fullest potential.

While Sebastian may have multiple conditions, this little guy is doing everything in his power to reach his fullest potential too. In his three years of life, Sebastian has had more hospitalizations and surgeries than most people have in a lifetime. He may be non-verbal, but Sebastian communicates in a big way. Every time he wakes up from a surgery he has the biggest smile you can imagine, kisses his mommy and gives fist bumps to all his nurses.

With Sebastian’s fist bumping technique and his amazing big smile, the participants who come through his mile are sure to leave it happy and full of energy and inspiration.

http://nchflutter.wpengine.com/wp-content/uploads/2015/10/Flutter_PatientChampion_Sebastian.jpg
  • Name: Sebastian L.Sebastian Longstreth
  • Condition(s): Down Syndrome
  • Age at Treatment: 3 years
  • Age Today: 10/23/20128 Years

On the very day Sebastian arrived in this world he began his journey to overcome extreme challenges.  He was born with trisomy 21 (Down syndrome), a significant cardiac lesion (atrioventricular canal defect), chronic respiratory failure requiring tracheostomy, pulmonary hypertension and duodenal stenosis. He spent the first seven months of his life at Nationwide Children’s Hospital. When he was finally able to go home, he still required 24-hour care.

“Being in the world of medically fragile children is like nothing I can describe well enough, but I can say that the bravery that these children are born with is amazing! They don’t know to be strong or fight but they do. They fight harder than I have even seen anyone fight before, yet they don’t even know the battle or the players,” says Sebastian’s mom, Shannon.

Nationwide Children’s Hospital is here to fight for kids like Sebastian. We provide state-of-the-art pediatric care for one million patient visits annually while remaining true to our mission to provide the highest quality of care to all children and their families regardless of ability to pay. We are one of the nation’s largest not-for-profit freestanding pediatric healthcare networks providing wellness, preventive, diagnostic, treatment and rehabilitative care for infants, children and adolescents, as well as adult patients with congenital disease. Our multidisciplinary team of experts is committed to ensuring that every child be able to reach their fullest potential.

While Sebastian may have multiple conditions, this little guy is doing everything in his power to reach his fullest potential too. In his three years of life, Sebastian has had more hospitalizations and surgeries than most people have in a lifetime. He may be non-verbal, but Sebastian communicates in a big way. Every time he wakes up from a surgery he has the biggest smile you can imagine, kisses his mommy and gives fist bumps to all his nurses.

With Sebastian’s fist bumping technique and his amazing big smile, the participants who come through his mile are sure to leave it happy and full of energy and inspiration.

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