Trevan’s Heart Journey

Ashley was 24 weeks along when she received the life-shattering news that her unborn baby, Trevan, had a severe heart defect and would need three complex heart surgeries in his future. Ashley and Trevan’s Dad, J.D., were shocked, but immediately began researching about their son’s condition to prepare for his arrival.

Trevan was born with Hypoplastic Left Heart Syndrome, a congenital heart defect. With this condition, sometime around the first 8 weeks of fetal development, the left side chambers of the heart developed too small to work effectively. This is a problem because the left side of the heart pumps blood to the body. With this side being too small, the body does not get the blood it needs. As a result, babies with this condition can become very sick shortly after birth, and are at a high risk of death if left untreated.

Just 4 days after he was born, Trevan had his first surgery performed by Dr. Galantowicz. Although the procedure was successful, Trevan struggled adjusting to his body’s new blood flow. He had to stay on the ventilator for a few days, and wasn’t released from the hospital for weeks.

At 5 months old, Trevan had his second surgery. His third and final surgery to repair his HLHS was shortly after he turned 2. While recovering in the hospital, he and his mom watched and cheered on his Dad from the window as he ran the Nationwide Children’s Columbus Marathon & ½ Marathon.  Every year since Trevan was diagnosed his dad has run in the marathon as a Children’s Champion to give back and raise awareness.

“Nationwide Children’s gave us hope. Hope that we could live a normal life with our boy. Their support throughout the entire process has been nothing short of amazing. Everyone at that hospital has a passion for what they do and how they can impact each family,” says Ashley.

Trevan is an outgoing, spirited, talkative little boy with a caring demeanor, always asking about others and how he can help. He enjoys going to the library to get new books, read and show off to the librarians, who are all his friends.

Trevan is very active and keeps his parents on their toes with his never-ending energy. He even ran in the Kid’s Fun Run last year after the marathon so he could also raise money for the hospital like his dad. As an up-and-coming runner himself – he can’t wait to cheer on all the participants in the Nationwide Children’s Hospital Columbus Marathon & ½ Marathon pass through his mile and help them achieve their goals, too.

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Ashley was 24 weeks along when she received the life-shattering news that her unborn baby, Trevan, had a severe heart defect and would need three complex heart surgeries in his future. Ashley and Trevan’s Dad, J.D., were shocked, but immediately began researching about their son’s condition to prepare for his arrival.

Trevan was born with Hypoplastic Left Heart Syndrome, a congenital heart defect. With this condition, sometime around the first 8 weeks of fetal development, the left side chambers of the heart developed too small to work effectively. This is a problem because the left side of the heart pumps blood to the body. With this side being too small, the body does not get the blood it needs. As a result, babies with this condition can become very sick shortly after birth, and are at a high risk of death if left untreated.

Just 4 days after he was born, Trevan had his first surgery performed by Dr. Galantowicz. Although the procedure was successful, Trevan struggled adjusting to his body’s new blood flow. He had to stay on the ventilator for a few days, and wasn’t released from the hospital for weeks.

At 5 months old, Trevan had his second surgery. His third and final surgery to repair his HLHS was shortly after he turned 2. While recovering in the hospital, he and his mom watched and cheered on his Dad from the window as he ran the Nationwide Children’s Columbus Marathon & ½ Marathon.  Every year since Trevan was diagnosed his dad has run in the marathon as a Children’s Champion to give back and raise awareness.

“Nationwide Children’s gave us hope. Hope that we could live a normal life with our boy. Their support throughout the entire process has been nothing short of amazing. Everyone at that hospital has a passion for what they do and how they can impact each family,” says Ashley.

Trevan is an outgoing, spirited, talkative little boy with a caring demeanor, always asking about others and how he can help. He enjoys going to the library to get new books, read and show off to the librarians, who are all his friends.

Trevan is very active and keeps his parents on their toes with his never-ending energy. He even ran in the Kid’s Fun Run last year after the marathon so he could also raise money for the hospital like his dad. As an up-and-coming runner himself – he can’t wait to cheer on all the participants in the Nationwide Children’s Hospital Columbus Marathon & ½ Marathon pass through his mile and help them achieve their goals, too.

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