Grayson O.
Age: 12 Years | Williams Syndrome
condition: Spina Bifida and Myelomeningocele
Blake’s Journey
Aric and Megan Mompher struggled to start a family for three years before daughter Ava, now 6, was born. Maci, age 4, followed just a few years later. So when the couple found out they were expecting another child, this time a boy, they were thrilled. Their hearts sank at a regular check-up when they […]
Read More
Tyler’s story
Tyler was born with Spina Bifida and had a self-contained myelomeningocele repaired at birth. He had no further problems till the age of 16 when he was having problems emptying his bladder. The doctors found that his spinal cord was tethered and had to do surgery to repair it. The tethered spinal cord did do […]
Read More