Jermaine’s Story

Imagine being an active 13-year-old boy and having to think twice before you ride your bike, play sports or even go for a walk. Any minute you could be in a situation requiring medical care. That is what life is like for Jermaine. He has severe Hemophilia B.

Hemophilia is an inherited blood disorder where a blood clotting factor is missing. A child with hemophilia may bleed easily or may not stop bleeding once they start. So the key is to prevent bleeding. This is not always possible with active children. To make the matter more challenging, a child with hemophilia may bleed without any known injury.

Jermaine is treated at the Comprehensive Hemophilia and Bleeding Disorder Treatment Center at Nationwide Children’s – the largest and only federally recognized pediatric Hemophilia Treatment Center in Central Ohio.

“Nationwide Children’s Hospital is a wonderful part of our lives. The Hemophilia Clinic staff has been there throughout his whole life helping every step of the way. I will always be grateful for such wonderful staff,” says his mom, Vanessa.

Jermaine requires factor intravenously to prevent bleeding episodes. He does his own venipunctures, having learned how to do so by attending Nationwide Children’s infusion weekends, Flying Horse Farms and various hemophilia camps. At a young age, he underwent arthroscopic knee surgery due to recurrent bleeding into his knee.

Jermaine doesn’t let hemophilia stop him. He is on the YMCA swim team in Lancaster and has won several awards. He also enjoys reading and playing video games. He loves animals and volunteers at the Fairfield Humane Society walking the dogs.

Just as Jermaine does not let hemophilia stop him, he does not want it to stop others like him. So he has spoken to various legislators at the Ohio and national level. Last year he traveled to Washington DC as part of Hemophilia Day with the National Hemophilia Foundation to speak with Congress members about bleeding disorders.

 

http://nchflutter.wpengine.com/wp-content/uploads/2015/11/Jermaine.jpg
  • Name: Jermaine D.Jermaine Davis
  • Condition(s): Hemophilia B
  • Age at Treatment: 13 years
  • Age Today: 11/06/200117 Years

Imagine being an active 13-year-old boy and having to think twice before you ride your bike, play sports or even go for a walk. Any minute you could be in a situation requiring medical care. That is what life is like for Jermaine. He has severe Hemophilia B.

Hemophilia is an inherited blood disorder where a blood clotting factor is missing. A child with hemophilia may bleed easily or may not stop bleeding once they start. So the key is to prevent bleeding. This is not always possible with active children. To make the matter more challenging, a child with hemophilia may bleed without any known injury.

Jermaine is treated at the Comprehensive Hemophilia and Bleeding Disorder Treatment Center at Nationwide Children’s – the largest and only federally recognized pediatric Hemophilia Treatment Center in Central Ohio.

“Nationwide Children’s Hospital is a wonderful part of our lives. The Hemophilia Clinic staff has been there throughout his whole life helping every step of the way. I will always be grateful for such wonderful staff,” says his mom, Vanessa.

Jermaine requires factor intravenously to prevent bleeding episodes. He does his own venipunctures, having learned how to do so by attending Nationwide Children’s infusion weekends, Flying Horse Farms and various hemophilia camps. At a young age, he underwent arthroscopic knee surgery due to recurrent bleeding into his knee.

Jermaine doesn’t let hemophilia stop him. He is on the YMCA swim team in Lancaster and has won several awards. He also enjoys reading and playing video games. He loves animals and volunteers at the Fairfield Humane Society walking the dogs.

Just as Jermaine does not let hemophilia stop him, he does not want it to stop others like him. So he has spoken to various legislators at the Ohio and national level. Last year he traveled to Washington DC as part of Hemophilia Day with the National Hemophilia Foundation to speak with Congress members about bleeding disorders.

 

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