condition: Epilepsy

Aaron’s Story

When you learn the long list of Aaron’s diagnoses, probably the last thing you would expect to hear are the words his mom, Jamie, uses to describe her son: “Aaron is a thriving 9-year-old boy.” But when you meet Aaron in person that is exactly who you will see. Aaron was born with Hypoplastic Left […]

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Kaylin’s Story

It’s hard to believe that life can be complicated when you are only 4-months old. But it can be. That’s when Kaylin Williams first began having seizures. Within a month, she had developed a second type of seizure. What followed was a year-and-a-half of treatment. During this time, Kaylin also experienced delays in her development […]

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The Medical Journey of Rare Disease

On October 30th 2016, after a full term, healthy pregnancy, we welcomed our precious Baby Boy Braxton into this world!  Our excitement over the birth of our newborn baby would quickly diminish, being replaced with constant worry and fear, as immediately after birth Braxton began showing adverse neurological signs and with many other health complications. We […]

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Maggie “Monkey”

Maggie was my youngest of three kiddos. Her brother Dan (20) is the oldest, Mary Kate (18) is right in the middle and Mag just turned 16 in September. Being the baby, Maggie was often the center of attention. Maggie has Lennox Gastaut Syndrome, a severe form of epilepsy. She didn’t get that diagnosis until […]

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Gaige’s Story

Stopping Gaige’s Seizures If he stayed up late, Gaige had a seizure. When he got too excited about an upcoming family event, the arrival of Christmas or his birthday, he had a seizure. If he exerted himself while playing basketball, he had a seizure. When the seizures started at 3 years old, Gaige had a […]

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Macy’s Story

Macy was just one year old when she was transported to Nationwide Children’s Hospital because she suffered a seizure that lasted over 30 minutes, resulting in her having to be intubated. Later, she had febrile seizures that were outside of normal standards and has since developed epilepsy. Although she is young, Macy has already endured […]

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Roger Michael’s Story

When Mikey was 17 months old, he was diagnosed with epilepsy. That day he began his journey of many therapies and treatments for his condition and developmental delays at The Division of Child Neurology at Nationwide Children’s Hospital, a leading national program with specialists that are experts in treating a broad range of pediatric neurological […]

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Hailey’s Story

Hailey had her first seizure when she was just 18 months old. By the time she was a toddler, she was having 30 to 40 seizures a day. Diagnosed with medically intractable treatment-resistant epilepsy, Hailey’s family says they lived life in a bubble because they never knew when the next seizure would come or how […]

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Our Journey

We started our journey here at Nationwide Children’s Hospital a little over six years ago. We started seeing A’niya’s seizures when she was three months old. We brought her in and they began testing. At this time I was still only 17 years old. I was scared, confused and hurt. December 10th of 2010 is […]

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