Jackson K.
Crohn's Disease
condition: Epilepsy
Hailey’s Story
Hailey had her first seizure when she was just 18 months old. By the time she was a toddler, she was having 30 to 40 seizures a day. Diagnosed with medically intractable treatment-resistant epilepsy, Hailey’s family says they lived life in a bubble because they never knew when the next seizure would come or how […]
Read More
Maggie “Monkey”
Maggie was my youngest of three kiddos. Her brother Dan (20) is the oldest, Mary Kate (18) is right in the middle and Mag just turned 16 in September. Being the baby, Maggie was often the center of attention. Maggie has Lennox Gastaut Syndrome, a severe form of epilepsy. She didn’t get that diagnosis until […]
Read More
Brionna’s Story
Brionna’s Epilepsy symptoms started when she was only 6 months old. She has multiple seizure types. Brionna has been fighting a very tough battle not only because of the seizures but also because of the medications she has been on to try to control them. But Brionna is a strong and spunky little girl – […]
Read More
Miracle For Malia
We started noticing seizures at 18 months. She finally was able to see a Neurologist at age 3. Her seizures are in her sleep. She had her first Epilepsy surgery in 2013. That got rid of the old seizures, but everything shifted and brought on new ones. We then tried the VNS. She’s exhausted all […]
Read More
Roger Michael’s Story
When Mikey was 17 months old, he was diagnosed with epilepsy. That day he began his journey of many therapies and treatments for his condition and developmental delays at The Division of Child Neurology at Nationwide Children’s Hospital, a leading national program with specialists that are experts in treating a broad range of pediatric neurological […]
Read More
Mighty Mason
In January of 2014, Mason (3), was recovering from the stomach flu. It wasn’t until our efforts to treat dehydration symptoms were unsuccessful that we became concerned. A trip to his pediatrician lead to an EEG which landed us in the Neurology department at Nationwide Children’s Hospital. At this time, Mason was diagnosed with Partial […]
Read More
Our Journey
We started our journey here at Nationwide Children’s Hospital a little over six years ago. We started seeing A’niya’s seizures when she was three months old. We brought her in and they began testing. At this time I was still only 17 years old. I was scared, confused and hurt. December 10th of 2010 is […]
Read More
Jacob’s Story
Jacob was born on October 21st, 2011. Around 10 months I started noticing that he wasn’t acting right and right away I made a doctors appointment, the doctors referred us to Nationwide Children’s. Right away they started doing some tests, blood work, MRI and EEG. When tests came back the Neurology doctor came in and […]
Read More
Strongest Little Girl
In 2011, we adopted our daughter, Rae, from China. She was part of the special needs program through our agency. When we chose to do special needs adoption, we knew how good Children’s Hospital was, and that they would help us with whatever needs our daughter may have. Little did we know how special Children’s […]
Read More